Ken & Mary Sue Grein

Expert Topics:

  • Family and Unconditional Love: How to cherish every family member—including those with special needs—as a full and valued part of the family.

  • Caregiving and Medical Advocacy: Insights on navigating the daily and lifelong challenges of caring for a child with multiple disabilities, including medical advocacy, learning complex care, and coordinating with healthcare professionals.

  • Resilience and Faith: Stories of maintaining hope, joy, and perseverance in the face of adversity, hospital stays, and ongoing medical setbacks.

  • Living with Purpose Through Hardship: Discovering profound meaning, purpose, and joy in life’s smallest victories and in journeys many would see as impossible.

  • Modeling Hope for Other Families: Offering inspiration and practical encouragement to families facing similar medical or special needs journeys.

  • Honoring Legacy: Sharing lessons learned from Jacob’s life and why honoring loved ones’ legacies can inspire future generations.

  • Transformation Through Adversity: The ways their experiences have shaped their perspectives on what really matters in life, not what is accomplished but who we become—especially in life’s hardest moments.

Ken & Mary Sue Grein

Parents, Caregivers, and Family Advocates

  • Authors of “Jacob: A Life Worth Living” – Their first collaborative book, sharing the profound journey of raising a child with multiple disabilities.

  • Parents with Over Four Decades of Experience – Married since 1977, raising four children (Jacob, Hannah, Luke, and Grace), and serving as unwavering advocates for their family.

  • Lifelong Commitment to Caregiving and Advocacy

    • Mary Sue became Jacob’s primary caregiver, developing an expert understanding of complex medical care and special needs advocacy.

    • Ken applied the perseverance and work ethic learned on his family’s farm to guide the family through daily challenges.

  • Modeled Hope and Resilience – Maintained joy and faith despite 37 years of medical struggles, countless hospital stays, and caregiving responsibilities.

  • Community Inspiration – Their story inspires other families facing disabilities to see every life as valuable and to find joy in small victories.

  • Mission-driven Storytelling – Wrote their book to honor Jacob’s legacy and offer hope to families on similar journeys, focusing on love, faith, and steadfastness through adversity.

  • Pillars of Their Colorado Community – Continue to live in Colorado, cherishing time with their children and grandchildren, while advocating for inclusion and support for special needs families.


Contact Us

316-644-9538

Bio

Kenneth and Mary Sue Grein have been married for over four decades and are the parents of four children: Jacob, Hannah, Luke, and Grace. Their love story began at Rockmont College in Colorado Springs, where they met during freshman orientation in 1977. Ken, a former college basketball player and lifelong contractor, grew up on his family’s farm in Brighton, Colorado, where he learned the values of hard work and perseverance that would serve him throughout Jacob’s medical journey. Mary Sue, a gifted pianist and devoted mother, became Jacob’s primary caregiver and fiercest advocate, developing an expertise in medical terminology and special needs care that few parents possess.

Together, they navigated 37 years of medical challenges, hospital stays, and daily caregiving while raising three other children and maintaining their faith through the darkest moments. Their experience as parents of a child with multiple disabilities taught them profound lessons about love, resilience, and finding joy in the smallest victories. The Grein’s unwavering commitment to treating Jacob as a full member of the family—never as a burden—became a model for other
families facing similar challenges. Jacob’s Story represents their first collaborative writing project, born from a desire to honor their son’s legacy and offer hope to other families walking difficult roads. They currently reside in Colorado, where they enjoy spending time with their children and grandchildren, who continue to be inspired by Uncle Jacob's example of living life to the fullest. “We wrote this book because Jacob’s story doesn’t end with his death,” Mary Sue explains. His life continues to teach us about what really matters—not what we can accomplish, but who we choose to be in both the easy moments and the impossible ones,”

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