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Authors of “Jacob: A Life Worth Living” – Their first collaborative book, sharing the profound journey of raising a child with multiple disabilities.
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Parents with Over Four Decades of Experience – Married since 1977, raising four children (Jacob, Hannah, Luke, and Grace), and serving as unwavering advocates for their family.
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Lifelong Commitment to Caregiving and Advocacy
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Mary Sue became Jacob’s primary caregiver, developing an expert understanding of complex medical care and special needs advocacy.
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Ken applied the perseverance and work ethic learned on his family’s farm to guide the family through daily challenges.
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Modeled Hope and Resilience – Maintained joy and faith despite 37 years of medical struggles, countless hospital stays, and caregiving responsibilities.
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Community Inspiration – Their story inspires other families facing disabilities to see every life as valuable and to find joy in small victories.
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Mission-driven Storytelling – Wrote their book to honor Jacob’s legacy and offer hope to families on similar journeys, focusing on love, faith, and steadfastness through adversity.
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Pillars of Their Colorado Community – Continue to live in Colorado, cherishing time with their children and grandchildren, while advocating for inclusion and support for special needs families.